So what is new? Lots. Sorry to be so totally delinquent with the updates, my family lives here with me every day and even they feel that way, it’s just been crazy.
Basically, a couple of weeks ago they did MRI which showed way more cancer way more places. In just the few days it took to arrange the MRI with contrast to clarify all that,the cancer had spread. Lots. So they stopped the drugs that weren’t working and decided to try http://en.wikipedia.org/wiki/Carboplatin along with another old but good drug called VP16 ( http://en.wikipedia.org/wiki/Etoposide )
And while we’re at it, remember that surgery I had to get chunks of tumor to send to Foundation One to look at mutations? Those didn;t get actuallly sent, or they got lost, but there was plenty of spare chunks of cancer sitting in the lab so they sent more. Maybe results by the end of the week. Meanwhile the wound is NOT healing. Two nurses and a large dose of IV narcotics let them repack the wound today,,,, ugh. They will look at it again today. And in other news, you know that pretty much 100 % of my vertebrae have cancer…. one crunched and broke today, due to a cough from a respiratory infection (for which I am now on antibiotics…) and the whole thing is complicated by all the steroids, which not only prevent healing but cause diabetes. Two early checks indicate that I may now be diabetic. Pancreatic metastases on MRI might should have given us a clue about that, too….
and it is 338 AM, I am going to try to get some sleep despite all this stuff to worry about. I love you all, please keep forgiving my lack of correspondence…. I will try to do better. I promise.