Day 16 overall. But I didn’t get to have chemo on Tuesday. My white blood cell counts, marginal on their best days, were all way too low. It wasn’t even close to possible. But those first two rounds were still hanging out in my hair follicles, doing their work. People lose their hair on this drug between day 14 and day 17. One of the other chemo drugs i had been on until September was supposed to cause hair loss, but mine had just gotten really thin, so i was thinking that maybe I was going to escape with my hair intact.
Until I woke up several times last night terribly itchy from the piles of hair that had fallen out and worked their way down my shirt in my sleep. So it was obvious that we might as well buzz it off.
Danny wanted to help but was so afraid of hurting me. So he passed the clippers off to Dixon and decided to take care of the camera instead.
George was fascinated by the process. If I were allowed anywhere near his classroom (which I am not, my oncologist has put me on kindergarten restriction until further notice, which breaks my heart, I LOVE being in that class….) I know from my other times of baldness that all the other 4, 5 and 6 year olds will be dying to touch my head and try on my hats and scarves….
I’m confident I’ll still be bald when I can go back to school….. they will all get a chance to rub my head…. good thing I don’t have personal space issues….
My parents were here again for the chemo that didn’t happen. This unpredictability is hard to deal with. Everybody wants to know what we need and when they can help, and it’s hard to sort out when I don;t even know when my treatments are going to happen. So they left this morning, my mom has cataract surgery next week so they can use a couple of extra days at home to get their ducks in a row,
But before we left, I wanted to show her about the magic of Alter Ego dyes. Plus it’s hard being away from her when she goes back, and I had this idea that if she and my sister Jane and I had matching scarves, that would help in a little way. So we made a big square headcover for me and pretty rectangular scarves for my mom and Jane.
They actually coordinate better in real life, it was hard to get the colors right with the flash.
In other news, remember my dream lymphedema sleeve? The president of Solaris, the company that makes them, said that they would be more than happy to do whatever it takes to get me the perfect sleeve. But I wanted to try the conventional route first, so my dad drove me to Winston Salem yesterday to a medical supply place that does the custom fitting to order them, and they put it through my insurance which said they would pay 100 %!!! It has been ordered and will arrive in about three weeks. I can’t wait until it’s ready (although I have to go back up to Winston Salem again to pick it up, they have to check the fit and the pressures with me in person… )
Here comes Danny back from school-school. Gotta go. Thanks again for all the love and support.