After an overnight of way too many pokes (IV try, blood sugar, IV try, blood sugar… see a pattern??) things finally calmed down at about 4 AM… and transport arrived at 5:30 to take Danny to the OR.
Danny was too tired to be nervous. He just wanted to be left alone for a few minutes to get some more sleep.
but in the preop holding area things are too bright and busy to allow a good nap…
“Danny, I need to check your blood pressure again”
“Danny, I’m the CRNA who’s going to be taking care of you, can you tell me when you last ate?”
“Danny, can I scan your bracelet?”
“Danny, I’m the anesthesiologist who’s going to be taking care of you, can you tell me when you last ate?”
“Danny, I need your mom to sign some forms”
“Danny, I’m the nurse in the operating room who’s going to be taking care of you, can you tell me when you last ate?”
ARRGGHHHH! Two hours of this was more than we could take. On the other hand, I was not particularly eager to have them wheel my baby away either.
Danny really is in that bed… if you look closely you can just see the very top of his hair. He looked so little. But he was seriously brave. Most of the time they give kids a dose of a sedative called Versed before taking them away from their parents… it’s better for Danny’s breathing if they don’t give it to him, so he just gets wheeled back wide awake. Here’s how wide awake he was: He likes to count backwards from 100 while the anesthetic drugs start working, and the first thing he always asks is what number he got to. This time he decided to count by twos and got to 72. They were all impressed 🙂
Once the surgery was done, they came out to show me photos from the endoscopy part. Poor Danny. His esophagus is just a mess. He has scars and bumps and erosions and even abscesses. They took lots of biopsies and had a bit of a challenge getting the bleeding from the biopsies to stop.
Eventually we got back upstairs. Danny has such a sore throat! Between being intubated for anesthesia, the endoscope, the biopsies and all, he is really hurting. Popsicles help, and jello sounded good…
We eventually got to go home… there are advantages to having just about as much medical equipment as a peds ICU in your boys’ bedroom… and we decided not to start any drastic therapy for his esophageal troubles until we get the biopsies back.
But I’m sad. Danny puts up with so much already, and none of the treatment that he’s going to need for this is easy or fun. Plus they will re-scope and biopsy in three months. They didn’t do anything to fix his feeding tube troubles because of all the inflammation… my hope, though, is that if they can use the biopsy results to guide treatment, he’ll be in less pain, and that would be nice…
For today, it’s naps to catch up on our sleep, a little yardwork for the boys, some brainstorming to think about special foods that Danny might like (that are soft, smooth, not acidic, very low protein…) and maybe even another nap… tomorrow is infusion day for me, so it might be smarter to be proactive with laundry… hmmm…