Hi, friends. It’s been a LONG time. Last night, when I saved up energy and took extra medicine and used up every bit of strength I had to give the kids “just a regular mama night” made me realize that it’s been such a LONG time that I’ve been unable to do things that “mama on the sofa” has pretty much become the new normal around here.
What was special about yesterday? Absolutely nothing. Just regular stuff. Driving Emily and a friend to the library. Taking Brian to the grocery store, letting him pick out a movie from the Red Box machine. Cooking dinner, nothing special, just chicken and corn casserole and vegetables. Doing dishes with the kids, then making popcorn for the big kids while they watched their movie and I kept George and his loud toys out of their way so they could actually hear the dialogue.
Sometimes I just want to pretend that things are totally fine, KWIM? And last night was good for that.
But you know, the “new normal” of a mom who can’t do much is OK in some ways, too. I’ve had more time talking one-on-one with each of my kids lately than I ever have. They all like it when they see that the spot next to me in my bed is empty… climbing in, claiming their favorite covers and a reading pillow and just chatting or going over schoolwork, doing narrations, sharing my ipod headphones to see what I’m listening to. Except Danny doesn’t chat, Danny reads to me. Hours and hours of reading.
This next few days are busy: my sister is coming (Thank God. I am SO looking forward to spending time with her and she’s the kind of person who just jumps right in and manages things 🙂 ) and Brian has a big soccer tournament and Sam has confirmation. We’re having a lunch after the confirmation along with the Mathis family… I’m Thomas’s sponsor, which brings me such joy. But don’t worry… we’re having the lunch totally catered. All I have to do is walk from the church over to the activity building.
But then Monday George is having his fifth surgery. That’s a LOT of operations for one little guy. They’re working on his right ear and doing a nasopharyngoscopy and likely will take his adenoids out. He has laryngomalacia, and needs his tonsils out so badly (even when not infected, they meet in the middle and push his uvula over) but tonsilectomy is just a really risky surgery before age 3. So we’re going to try to wait.
While we’re talking about next week’s schedule, it’s a busy one for me medically, too. I see the un-pain guy for a thoracic epidural for the nerve damage in my arm, and I see the rheumatologist… we had thought the last couple rounds of chemotherapy would quiet down my arthritis, but no such luck… so he and the oncologist have to cook up another plan.
Oh, and I saw the endocrinologist last week – the guy who’s managing the adrenal pituitary stuff. He thinks we’ve made very little progress, but I guess we knew that already.
I think that’s all the news… when you spend most of your time resting or sleeping not much news actually happens. But hold George in prayer Monday… he’s awfully little to be having his fifth surgery, he’s tough to get an IV started on, and we all love him so much that it breaks our hearts when he doesn’t feel good.
I promise more frequent updates, and maybe even photos from confirmation. And if I can’t post, I’m sure I can get Emily to take care of it. Oh! I have to have her post a link to a really cool calculus/physics video she made. Or maybe Sam knows how to stick videos into the blog… let me call him over here and ask him.